It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Antrovetricular Canal, a complex single chamber congenital heart defect. Most people knew him as, “The Tin Man”, a nickname given to him to help better describe his defects to friends and family before he was born.
At only three months old, Holden underwent his first operation to repair his ailing heart.
Arnold Palmer Hospital and Strong Films filmed the ins and outs of that procedure, using the footage to create an award winning film. Holden would go on to require three more operations, before finally being listed for a transplant in October of 2013.
On January 5, 2014, while awaiting a new heart, he lost his battle with CHD.
At home Holden was strong, constantly finding ways to overcome his defect. He was a regular boy who loved fish, swings, and his dog Maggie. While hospitalized he passed his time with personalized wagon rides, often parading around the hospital several times per day. It was his safe zone, and a marker for all who knew his story.
Holden certainly isn’t the first child who has been through this. We’ve met so many families that come armed with similar stories of the amazing CHD battles they’ve watched their children fight through. Many end with victories, while others pass fighting an honorable battle until the end. There is one common theme though, a strong family, banding together to help their child in need.
Over the last two and half years we’ve been blessed to share Holden’s story as he carried on his day to day fight. In his passing we carry his fight in spirit through the foundation created in his name.
Greg & Kara Olsen contributing $289,000 to Levine Children’s Hospital fund.
Carolina Panthers tight end Greg Olsen is giving from his heart.
Olsen, whose son, T.J., was born with a heart defect, will donate more than $289,000 to Carolina's HealthCare System’s Levine Children’s Hospital through his foundation that will help provide home care support to pediatric heart patients once they’re discharged.
The contribution will be presented Friday at 2 p.m. at the hospital as part of Olsen’s HEARTest Yard Fund. According to a press release, the fund will “extend the family-centered care concept beyond the hospital walls so the transition from there to the home will be easier for other families with children suffering with congenital heart defects.”
Here’s our story from October on Olsen and T.J., who in late May underwent the second of three surgeries. –Jonathan Jones
Read the whole story at: http://blogs.charlotte.com/panthers/2013/06/greg-olsen-contributing-289000-to-levine-childrens-hospital-fund.html?utm_source=dlvr.it&utm_medium=twitter
Spreading Awareness of CHD at “The HEARTest Yard“